Fibro Conference Next Week!

I haven’t blogged for a while, I’ve focused on getting my health back on track ready for a busy end of month. I can;t believe it;s come around so quickly but next weekend is the Fibro Conference in Chichester. Being the stationery addict I am I have a new lap top case and a selection of pretty pens and note books ready to go so I can report back on everything that’s discussed.

Here’s a brief overview from the Folly Pogs Fibro Group (the group who run the conference) of what will be happening:

With a wide and varied programme around the main FM symptoms, we are aiming to please with interesting speakers from the USA, Canada, Australia and the UK, giving you their views on living with FM.


Iris Weverman, a registered physiotherapist from Canada who specialises in FM, will talk  about chronic fatigue, stiffness and exercise for fibromyalgia. In a second talk  she will discuss trigger points versus tender points. This is not to be missed.


Dr. Nick Read, a leading speaker from Sheffield, a gastroenterologist psychoanalytical psychotherapist, human nutritionist, interested in FM, will talk about his active interest in the IBS Network, and integrated medicine.  As a nutritionist we are hoping he will give us a recommended diet for those with IBS.


Andrew Pothecary, a Specialist Pharmacist in  Rheumatology & Biologics at the Royal Cornwall Hospitals NHS Trust, will be lecturing at The Clinical Pharmacy Congress on the Future of Clinical Pharmacy in London on the Friday.  But he has agreed to stop over and talk to us on Saturday. We hope to learn more about the medications for our pains that our GPs describe for fibromites. 


Afifah Hamilton, MNIMH Cert Phyt ITEC, GAP practitioner and nutritionist, is an alternative medical practitioner who uses herbal remedies for wellbeing. Afifah is medically trained and a specialist in physical, psychological and conventional treatments with herbal options. She will be discussing sleeplessness among other symptoms.


An American lady with fibromyalgia and a great reputation,  will be with us to talk about her commitment for FM. We hope she will include news of research, life with FM in the States  and living with fibromyalgia. Jan Chambers is President of the USA National Fibromyalgia  & Chronic Pain Association, founder of the Centre of Understanding, Research and Education  of Fibromyalgia (CURE FM) and co-founder of the NFA Leaders Coalition, Executive Committee.  Married for 35 years and the mother of 5 children, Jan has had a roller coaster ride with fibromyalgia since 2005. Her background really makes interesting reading and will save a lot of questions if you are coming to conference. This really is a lady who commands my highest respect and I am honoured she has agreed to visit us. Try http://www.fmcpaware.org/jan-chambers


“I’ve got my life back, and I love every minute of it” she said.


Another interesting speaker with big claims is Philip Rafferty. Born in  the UK  he lives in  Australia and travels the world. A specialist in fibromyalgia, chronic pain and CFS he is a kinesiology ‘wizard’. He claims the corrections he teaches fibromites keeps them out of  fight/flight/ freeze/survival.  What he does he says is different to anything else. He achieves instant dramatic pain reduction. A must see!


We are again pleased to welcome Wes and John with the Benefits & Debt Clinic which will be operating Friday afternoon from 3.15pm. Look at their website –  for debt and benefits http://frontlinedebtadvice.org.uk/ – you might find it interesting.


As usual there will also be other attractions. On Friday we have the film premier of the documentary film made at FM Conference 2014. It is called ‘Focus on Fibromyalgia’ and includes consultants’ comments as well as those who live with this condition. Be sure to see the film as it is a movie you must see.  Lasting 65 mins. it is full of information and you will need to go back and back again to the film to see what you missed. Copies of the film will be available to purchase after the premier.


Jen Lee is back with us again for some light relief and with more Belly Dancing steps to learn. We hoping to have all doctors on stage Sunday afternoon. Do not forget the auction of wine and other gifts donated by delegates on Monday morning.


Simon Stuart, a leading member of the FibCon team, who works in the medical profession with the elderly, will be giving a talk about Alzheimers.

As you can see, there are lots of speakers from around the world as well as alternative therapies. I must say I’m looking forward to the belly dancing session. And a dip in the jacuzzi afterwards!

If anyone has any questions or queries they would like me to ask at the conference, do let me know and I’ll add them to my list.

Most importantly I must remember to take enough time to rest during the long weekend, I have therefore already accepted I will have to sacrifice evening entertainment to ensure my wellness and that I can last the weekend. And maybe have another dip in the pool!

Karen xx

3 thoughts on “Fibro Conference Next Week!

  1. Hi
    How often do they have these conferences as I would love to go to one. And how much are they.xx
    I really enjoy reading your blogs I feel like I’m not alone now.xx


    1. Hi Jane

      I believe the are annual but not too sure, I found it by chance online. It’s quite an expensive weekend but it is full board, it’s around £250 pp sharing a room I think.
      Thank you for your kind words, it’s always great to hear from you. Do stay in touch!

      Karen xx


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