The 12th May is Fibromyalgia and ME/CFS awareness day. These conditions are not well understood, and yet neither are uncommon and both have the potential to leave people housebound, bedbound and very much disabled.
I’m fortunate that at the moment I remain relatively physically able. I can walk, shower and dress myself. I know many people who are not so fortunate. That I can do these things doesn’t mean they don’t hurt, but as of now that pain remains tolerable for which I’m very grateful.
It’s so hard to see your life change in front of your eyes as your body falls apart and becomes unable to do the most basic things. When I was officially diagnosed with ME/CFS I was hardly able to go out, I was off work on long term sick and was back living with my parents because I couldn’t look after myself. I couldn’t cope…
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